anysia | Entries tagged with hospital

After a week of the proscribed medications, I was still having the dystonia seizures. I can't describe how it feels to have your body trying to force itself into geometrical angles where there shouldn't be.

I did what I was instructed to do, I went back to the Emergency Department (why? Because the soonest I could get to see a Neurologists is December 12th)

While waiting to see a doctor, I had a seizure. My son, and a ward nurse were there to help immediately. After waiting another hour, I got to see a doctor. Or should I say he brusquely spoke to me. Then he left, saying he was getting some information for me.

While I was waiting, I was asked if I could move to the ambulatory waiting room, as they were swamped. No problem. Alan and I went there, each of us sitting in a chair waiting. The doctor showed up, and asked us to follow him. I stood up, took three steps and started having another seizure. The 'doctor' saw what was happening, said "Oh, I'll be back when when you're finished." and walked off and left me there, in extreme pain, with my son preventing me from falling to the floor. After the seizure was over, my heart was racing, and I was gasping for air.

The 'doctor' showed up and gestured for us to follow him, and then disappeared again. I presumed he was getting me information.

He was. He handed me a fucking POST-IT note with a web address. And then he just walked away.

Wing and I had a conference call with two friend, filling in some of the details of the useless visit to Fiona Stanley Hospital.

Yes, I had a seizure while waiting to be seen, but I also had another one when the doctor asked me to follow him, and when he saw what was happening, he said "I'll be back when you're done." No offer of assistance, help not even a comment. He just walked off. If it hadn't been for Alan, my son, I would have landed on the floor.

This is NOT acceptable behavior, and Wing, Daryl, and Meegan said I should lodge a complaint.

So, I have lodged a complaint against the 'doctor' that was treating me, watched me having a seizure and said "I'll be back when you're finished'. Person taking the complaint said that behavior was unprofessional and unacceptable.

Complaint has been written up, and filed. Maybe he will learn to be a bit more empathetic.

I still don't feel any better. If anything, emotionally, I feel worse.

Current 'Tude broken

About two weeks ago, I woke up with what I thought was just a bad cramp/charley horse, from my right foot, straight up to my right hand. The pain was intense. My foot arced and the toes curled, and my fingers dug into the palm of my hands. As I was 'stuck' in one position by closely snuggling cats, I thought it was just because I was in one position for too long.

Then, 5 days later, it happened twice. Once when I got out of bed, and the second time when I was walking out to the car.

Two days later, Monday, it happened 4 times. I called GP, and was informed I would be told to go to the ED/ER, so I called a cab. Had another 'cramp' before the cab arrived, and another when the cab dropped me off at the hospital. The ED doctor got to witness one of the 'episodes', and I was admitted to the Neuroscience wing of the hospital for a possible seizure disorder.

Four days, lots of blood tests, (geeze, people how many times do I and the tests have to tell you that I am NOT diabetic!) a CAT scan, an MRI, and having the daytime floor staff seeing a 'seizure', I was hooked up to an EEG and a seizure was recorded and videoed.

The goodish news: Dr B, the neurologist, told me I don't have any tumors, lesions, clots. Nor do I have any signs of Parkinsons, Alzheimer's, or other degenerative brain disease. EEG didn't record any epilepsy or other seizure disorder.

What I do have i 'idiopathic hemidystonia'. Something, for whatever reason, is causing these seizures-not-seizures. It's my brains' way of handling.. something. They are painful, and outright frightening. That feeling of loss of control is terrifying. But I remain alert, aware, and even during them, if given a phrase or question, I can answer it or repeat it back.

There is also this wonderful (sarcasm there) kenetic component. In other words, certain body movements can bring one on. (Example, after reflex testing in both the ED and my hospital room, getting up and sitting back down would cause one) I've been having a few every day since being discharged from the hospital.

As awful and as exhausting these are, they aren't life threatening, so I was allowed to go home. I made an appointment to see my GP, to see what the next step should be.

Current 'Tude exhausted

Took antiseptic shower with the pre-op soap. Needed a bit of help reaching around my back, so called Wing for assistance. He obliged. Skin feels a bit tight now.

Necklace my grandmother gave me, rings, earrings, bracelet, and citrine in a box to keep them safe at home. Have my overnight bag packed.

My stomach is churning with stress/anxiety right now. I should go to bed now, and try to get some sleep, as I will be getting up around 4am to get to the hospital by 6:30am.

Current 'Tude anxious

Had a phone call from the anesthesiologist as she wanted a full run down of my medical history (or as near as I can fill her in on) and for what will be happening on Monday.

It seems I will be given an epidural, and then general, as a way to cut back on the amount of general to be used. By keeping me numb from lower back down, the less general anesthesia is needed, and it will clear the system faster for a quicker recovery.

I will also be given an arterial jab as a better way to keep an eye on oxygenation and to keep an eye on my blood pressure.

This is the first time I have had to have major surgery.... and I have no problem admitting I'm scared.

Current 'Tude scared

And not overly surprised at that. My son was taken to the hospital early yesterday morning, before 6am, in extreme abdominal pain. No, not gall stones, not appendicitis, so any keyboard diagnosticians take a break. Spent almost the entire day with Alan in the ER and then hospital ward.

After being awake for over 20 hours, I come home and find some really rancorous comments from RWNJs that think they're being witty because they look at the header of my weblog, and stupidly assume it's referring to my mental health. No, it's a bit of prose from a book about arguing with oneself and choices, and how close we come to making wrong decisions. Literacy is great, and when you see it fail, it can be either amusing or sad.

This time, it just pissed me off. I don't mind disagreements, but when you take it to personal attacks, all your comments have lost any merit you thought they might have had.

Now pardon me, while I go back to waiting.

Oh, and in case you think I'm bullshitting/lying :

My son Alan, at Fiona Stanley Hospital, letting concerned friends know he's 'okay', taken yesterday afternoon.

Now fuck off.

Current 'Tude angry

Wing 's mom has had a relapse. She's refusing to eat all of her meals, now, and lost the weight she put on the first 7 days she was there.

Trudi says it's not unusual and to be expected.

We think t's because she's resorting to emotional blackmail, as a way to be allowed/let out, as her ruse of sending us shopping for suitable clothing' , and nothing being 'suitable', so she needed to be there, aka out of the hospital. She was told that this wasn't going to happen, and the depression troll kicked in. She's been doing the moaning, rocking, whining, cajoling, woe is me, I'm doomed, we don't know anything, the doctors don't know anything, etc etc.

Well, her reward for refusing to eat is she has to now take a dietary supplement 4 times a day. It's about an inch worth, in a water cooler cup. She carried on and on for 15 minutes, about how terrible this was, moaning, moaning, saying no, I don't need this, I don't want this. Cue one of the NOT NICE NURSES. Told her yes she does and she was carefully watched to make sure she took it, and didn't just pour it down the drain, or spit it out. 15 minutes of fighting about it, less than 5 seconds to take it. sigh

She was told by me, and Wing (and the hospital staff) that if she doesn't eat her meals, she has to take the dietary supplements. Thing is, if she keeps this up for too much longer, the semi-hunger strike, they will force feed her, and we don't want it coming to that.

Also, she prefers to have only Wing visiting her. Not going to gloss over the reasons why, but the short version is I'm not a 'suitable' wife for Wing, in her eyes. Of course, the other reason she doesn't want me there is I'm more like Trudi. I will contradict her, and I will tell her to calm down that she's winding herself up, the same way Trudi does.

Current 'Tude lethargic

Back to normal. Doc wasn't too worried about the spike.

If I can manage today without morphine injection, I can go home tomorrow

Current 'Tude hopeful

I got a fluroscope picture of my brand new 'disc'. Looks pretty cool, if'n I say so myself.( More medical stuff, cut for the squeamish )

Current 'Tude sore, sleepy

Doing much better today. Actually got up and toddled around my room.
( Medical stuff,probably boring and icky )

Current 'Tude resting

Spoke to Dr N. about what to expect tomorrow. Have begun Pre-Op fast an hour early. Yes, I am still a bit anxious about what to expect ( Medical jargon and other such stuff )

Current 'Tude nervous, scared, anxious, and hopeful

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anysia

July 2025

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Where to begin
Dear Fuq Up Fairy, find someone else to bother, please?
Soon
It's starting to get real..and real scary
Didn't sleep too well
Two steps forward, one step back
Temperature
Ooo more pretty pictures
Update,Hospital Stay, Day 4
Twas the night before surgery ..

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Listening to the Voices in My Head

Voices in the Dark, Musings from the edge.

Entries tagged with hospital

Where to begin

Dear Fuq Up Fairy, find someone else to bother, please?

Soon

It's starting to get real..and real scary

Didn't sleep too well

Two steps forward, one step back

Temperature

Ooo more pretty pictures

Update,Hospital Stay, Day 4

Twas the night before surgery ..

Detailed Bio

July 2025

Recent Ramblings

Places Along The Way

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